Family works to get baby with rare bone disease home for Christmas
SKIATOOK, Okla. (KTUL) —
A family is trying to get their baby home for the holidays, but they're finding out it's not as easy as they had hoped it would be.
To most, 18-month-old Mackenzie Garrison looks like a normal, healthy baby.
In reality, she is one of less than 100 people in the United States to have this specific blood disease.
"She was diagnosed with Congenital Amegakaryocytic Thrombocytopenia (CAMT) it is one of the most rarest forms of bone marrow failure," Mackenzie's mom Lacey Garrison said.
Her blood doesn't make enough platelets. A minor cut could cause her to bleed out.
"I made the decision to bring her to Boston to get a second opinion," Garrison said.
Mackenzie had a bone marrow transplant in September.
She and her mom hope to get home to Skiatook for Christmas, but that's where things get complicated.
"She can't really be around anyone," Garrison said. "She is immune compromised. She is on immune suppressants to keep the bone marrow from failing."
Mackenzie must avoid germs at all costs. Something as little as a cold could kill her.
But they are 1,600 miles away from the man they love the most.
"I just want them home," Mackenzie's dad Donny Garrison said.
To get Mackenzie home, she has to fly privately.
"She cannot be in any kind of public places," Donny said. "She will be quarantined for a year."
It is a big wish.
"I don't know how I would go about thanking someone," Donny said.
But without a private flight home, Mackenzie won't have much of a Christmas.
"Here, she can't see Christmas lights, she can't go upstairs to see the Christmas tree because she is on isolation," Garrison said.
A wish to be together.
"It would mean everything," Garrison said.
They hope you will help cross this wish off their Christmas list.
"I want them home," Donny said.
The doctor told her parents she could go home on Dec. 20.
If you can or would like to help the Garrison's get baby Mackenzie home for the holidays, you can contact Lacey at 918-310-9466.
You can also donate to their many medical expanses here.